One thing I came accross recently was his 60 second guide to RA, which I think sums up the main points perfectly. If you aren't too sure exactly what Rheumatoid Arthritis is and who it effects, I suggest you take a look :)
Thursday, 28 March 2013
Want to know more about RA?
One thing I came accross recently was his 60 second guide to RA, which I think sums up the main points perfectly. If you aren't too sure exactly what Rheumatoid Arthritis is and who it effects, I suggest you take a look :)
Friday, 22 March 2013
Dis-Appointment Time
So after waiting for a sooner appointment, I heard nothing for weeks and therefore I decided to email my
rheumatology nurse. It has happened before where my nurse hasn’t had any of my
notes passed to her, so I decided to tell her everything that had happened in
my appointment with the consultation so that she was prepared.
I had been in more pain since reducing my dose of mtx and my
skin had become quite sore, but I just set my sights on my appointment in March
to get me through.
I knew that this would happen, which is why I emailed Judith
a few weeks earlier. Jill explained that Judith is on long term sick and
therefore she will be taking over her patients, as well as her own, but she had
no access to Judith’s email.
Obviously, Jill could not take my word for it that I was
meant to be starting injections, so she has to contact my consultant to confirm
this. The second bad news of the day was that my consultant has just left and
gone to Tenerife, so there is going to be a
delay. Once this has all been confirmed, the injections need to be ordered,
which can take a while.
So basically, I am left in limbo with no idea of when it is
all going to get sorted. This is just one of many occasions where I have been
let down. It is incredibly frustrating and I don’t even know what to do about
it all…
Downward Spiral...
Hi Everyone
So I realise that I have been extremely quiet on the blog
front recently, but it is because so much has gone on.
In the end I emailed my rheumatology nurse and told her
everything that was going on. She got in touch with my consultant and got me an
emergency appointment for a few days later. I was so grateful at how fast they
were to help me, as I was pretty miserable by this point. I had blood test
results around this time and recently found out that my inflammation count had
risen from 8 to 24, where as it must be under 20.
The other development was that my skin had broken out in
psoriasis up both my arms and on the back of one of my legs. This meant that my
consultant could officially diagnose me with psoriatic arthritis. The diagnosis
also explained a few other symptoms, such as extreme pain in my right heel. It
is pain underneath my foot rather than a joint and I can barely put any weight
on my heel at all some days. My consultant explained that with psoriatic
arthritis, you can also develop another condition where the tendons can also
become inflamed and this tends to start in the foot.
Labels:
confusion,
diagnosis,
issues,
Methotrexate,
MTX,
problems,
Side Effects,
swelling
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