Metoject take two!

So since my last post, I have taken a break from the metoject to get rid of the bronchitis. Thankfully it has almost gone now, with only a slight cough left behind.

I decided to try again with my injections last Friday, but this time to inject into my leg to see if this would help prevent being sick. It actually hurt a lot more than my stomach, but maybe this was because I was so nervous about it this time. I also bled a little bit, which I never did with my stomach.

Despite this discomfort, I wasn't sick! I was extremely tired over the weekend and slept for most of it, but other than that, I was okay.

This morning I injected into my leg again, this time with much less pain, however when I took the needle out, a bit of the liquid from the needle came back out of my leg. A bit strange! I have emailed my nurse to make sure that this is okay. Once again, I have not been sick, which is great.



My finger was swollen and stuck in the
position in the first picture for months,
the second picture shows that I can now
bend it nearly all the way and it's much
thinner!

So is it working? I would say without a doubt the injections are having a positive effect. My psoriasis is definitely reducing and my joints feel almost pain free. I feel slight discomfort in a few of my joints at times, such as my index finger if I pick up something heavy, but definitely there is a massive improvement.




Hopefully now I am on the road to recovery and I can tollerate the metoject.

Metoject Update

I have now injected myself three times, each time with little problems. Of course it hurts a bit, but after 5 minutes it is completely forgotten about and I can get on with the rest of my day.

I was so pleased to have absolutely no side effects after I injected the first time and just hoped that this time the medication would work.

I started to notice that my psoriasis was less red and noticeable. My arm didn't look completely clear by any means, but it was definitely improving. I also managed to start running again, something I wasn't sure I would ever be able to do again. These were all positive signs and I began to gain a bit of hope.

The next Friday I woke up to have no voice at all. I had been feeling a bit off for a few days, quite tired, no appetite and I had slight sinus pain, but Friday it had seemed to hit my chest all at once. Regardless, I did my injection and went to work, which happened to be at a client's premises. 

Despite the fact that I was unable to speak, I actually felt okay for the first hour or so. But at around 10am, I suddenly started to feel very nauseous and by lunch time I had to go home to be sick. I went back to work though as I didn't feel as bad after that, but the rest of the day I felt very drained.

After a few days of having no voice and feeling pretty under the weather, I went to the doctors to find out I had bronchitis. This explained why I was feeling so ill, but as it is a virus, there is no treatment for it, I just had to ride it out. 

By the next Friday I was still feeling ill, but got up and did my injection none the less. Once again, after a few hours, I was sick, but this time it kept coming. After a few times being sick in work I had to go home, I felt horrendous and slept for the rest of the day. 

I have contacted my nurse as I am concerned that it is the injections making me sick, but since both times I have been sick I have also had bronchitis, the nurse can't be sure which is causing it, or if its a mixture of them both.

So for now I have had to stop my injections until I get rid of this bronchitis. I'm hoping that will be soon as I have had it for two weeks now. Then once it's gone, if I take my injection and I am sick again, we will know that I can't tolerate them either.

I really hope not because it is such hard work trying to get started on a new medication. Fingers crossed I can take my injection next week and all will be okay!

An arthritis upgrade...

Hi everyone

So as I mentioned in my last blog, I had a check up with my consultant this week. I first saw her in August 2012 when I was diagnosed with arthritis, click here to read the post about my first meeting with my consultant. The plan was to get started on medication and to come back in three months to see how I was doing... Well five months later I finally got my appointment!

My expectations of how the appointment would go were nothing like what actually happened! After being told by my rheumatology nurse that I was improving nicely and therefore didn't need to see her anymore or have my blood tested as regularly, I expected for the consultant to match this notion. Even though in the back of my mind I felt like I was going downhill again and a lot of my pain had returned, since the nurse was happy with my progress, I assumed that I was just having a bit of a blip because of the snow and cold weather.

In actual fact, after being examined by my consultant, she told me that since I still have so much swelling and pain in my joints, this is an indication that my medication (Methotrexate) is not working properly. I was slightly confused by this, as a few weeks ago I felt almost back to normal, but it turns out that my steroids were masking the fact that my medication wasn't working. When I was reducing my steroids, my medication should have stepped in its place, but instead I have just got progressively worse.

The consultant also asked if I had any rashes on my body. I told her about a small rash that had started on my elbow and had appeared up my right forearm over the past week, but it was only minor and I didn’t have it anywhere else. (It turns out that I also had it on my other elbow, but couldn’t see it) My consultant believes that this is the start of psoriasis, and therefore I probably have Psoriatic arthritis.

About 1 in 10 people with psoriasis develops psoriatic arthritis and in most cases, the arthritis develops after the psoriasis. However, in a small number of cases the arthritis develops first, sometimes months or even years before the psoriasis develops. Trust me to be the minority!

This also highlights the fact that my medication isn't working because if it was, it would have stopped the psorasis from a developing. In a way, this is a good thing because it means I can have a firmer diagnosis of the type of rheumatoid arthritis and get the most accurate treatment, but at the same time I'd rather have nice skin. Although, at least I only have very small patches of it at the moment.


So the new plan is I have had my dose of Methotrexate increased to 8 pills, and will continue with this dose for the time being. I will have to go back to see my rheumatologist nurse in 6 weeks to see how I'm doing. If it looks like I'm still not getting better than this means that I am just not absorbing enough of the Methotrexate for it to work and therefore I will have to start injecting myself with it.

So I'm hoping that the increased dose gets to work ASAP!

Its Christmas!!

Firstly, appologies for such a long delay since my last post once again! 

I mentioned in my last post that I was starting to feel ill with a sore throat and cough, but I was planning to spend the weekend recouperating... Well this has turned into several weeks and I'm still not 100% better! I got really ill and slept for pretty much 3 days straight, I even had to take a day off work which is not like me at all. But I slept for my entire day off, so it was definitely the right decision. Now I am much better, but I still have a cough and I am still going through several boxes of tissues!

Anyway, since it is nearly Christmas, I thought I'd reflect on the past few months with how far I have come since my diagnosis with RA and look forward to the future.

I can honestly say that compared to two months ago, I feel like a completely different person now that I am on methotrexate. I actually feel like me again. I can run up the stairs, I can stay up past 8pm without feeling exhausted, I can even get up and ready in the morning before I have to take my meds. These all sound like small things, but it's the little things that you notice more when they are taken away from you. Like not being able to unscrew a bottle top or wear shoes that have a slight heel.

There is definitely still more improvements to be made, mainly with my index finger which is still swollen. I cant really use my index finger for anything yet, so I struggle to write or do things like squeeze shampoo out of a bottle. But I can straighten my finger now, so I guess it will just be a longer process to get back to normal.

I am down to 7.5mg of steroids now and I am hoping to reduce this to 5mg over the Christmas break.

My hopes for the new year are to get completely off steroids and to get as close to normal as possible. I would really like to get back to my normal weight and fit back into all of my clothes too. But with coming off the steroids and hopefully being able to start exercising more, this should be possible! (Fingers Crossed) I am feeling very positve about the new year. 

One thing that I want to add really quickly,


Wishing everyone a fantastic Christmas and a wonderful 2013!

Checkup clinic, blood tests and DIY

As expected, I haven't had much spare time since getting the keys to my house so once again, apologies for the delay in my latest blog post. Jamie and I have spent every spare minute we have working on our house! We went straight round last Friday and started stripping wallpaper, only to find what was to become our worst enemy lurking underneath... Wood chip! 

For those of you who are lucky enough to not have come across wood chip paper, it's basically a cheap paper with small chips of wood within it which gives the effect of a textured wall finish. Apparently it was really fashionable in the 1970s?! Then add several layers of paint on top and you have the most difficult thing to remove from walls...Ever! Best of all, it is on every single wall!! So we have spent the past week steaming and scraping the stuff off the walls, with the help of our families. We are making progress with only a few walls left to do, but i feel like I have a scraper permanently attached to my hand!

In other news, I had my monthly check up with the Rheumatologist nurse this week. My blood test results showed that I was doing well and my inflammation was coming down, which is great. Its a relief to know that the MTX is working. It also showed that my white blood cell count is still high, so I'm constantly fighting some sort of infection, although it can't be that bad as I haven't felt particularly ill. I have been quite lucky so far with not picking up any bugs or viruses, despite having my immune system dampened by medication. However this week I was finally beaten and I now have a sore throat, sore head and annoying cough. I'm feeling pretty lousy and working on the house every spare minute probably isn't helping but I'm not one to mope in bed.


It was also blood test wednesday this week. I managed to get my best place in the queue ever, Patient 5! It was pretty lucky though to be honest because I felt like I was going to pass out if I had to wait much longer. I think it was the mix of feeling unwell and the warm hospital, but I was glad to hear my name being called. I managed to get a right whopper of a bruise this time though, I think its time to start switching arms!

I'm out for tea with the girls tomorrow for a catch up before Christmas and all my other time will either be spent working on the house or recouperating. Hope you all have a lovely weekend!

 

My new addiction

Apologies for the delay since my last post, I have been rather busy over the past week with several appointments and errands to run. Hopefully I will be able to explain why in a few days, but until then I will update you all on my progress.

I am definitely noticing improvements in my condition. Firstly, I am nowhere near as tired as I used to be! I used to struggle to get past 7pm without wanting to get into bed, whereas now I am managing to make it to around 9pm/10pm before I think about getting in to bed. (Wednesday is my exception though because Jamie is at night school so I get into bed really early!)

Secondly, I can now get out of bed straight away now. Before hand it would take about an hour after I had taken my steroids before I could even think about moving, whereas now I get up straight away. I am still sore when I first get up and it does take a while to loosen up, but it is much more bearable these days. 

Sadly, my finger is still not showing any changes at all!!! I'm due an appointment with my rhuematologist doctor over the next few weeks so hopefully she can put my mind at ease and tell me that it will get better eventually. On the brightside, I have still not had any negative side effects from the medication, which is fab!

I also wanted to talk about my new addiction... walking! Over the past week I have been for 3 walks with a total distance of over 11 miles. I love getting wrapped up, turning on shuffle on my iPhone and setting out for a walk on my own. Its a great to get some head space and time alone with your own thoughts, plus the fresh air makes me feel great afterwards. I was planning to do a nice long walk tonight, but my foot has started to hurt when I got home so I am reluctantly having a night with my feet up in the hope that its better tomorrow.

Keep your eyes peeled for my next blog post... I will hopefully have some exciting news to share!

Improvements...

Hi everyone

I noticed a few improvements in my condition over the weekend, so I thought I'd let you all know!

Firstly, on Saturday morning, Jamie (my fiance) and I were up at 6.30am because Jamie had work. Usually when Jamie works at the weekend, he drives me home because I don't have time for my steroids to kick in before I have to drive. However, this weekend I managed to drive home 15 minutes after getting up without too much discomfort! I'm not saying it was a pain free drive, but certainly bearable, which is a huge improvement. This got me thinking that maybe I don't need to wake up at 5am to take my steroids anymore... The past two days I have taken my steroids at my normal wake up time of 6.30am and have managed to drive to work okay. So no more 5am wake up calls!!!

Secondly, after getting home, having my breakfast and catching up on Friday night's Children in Need Show (I recorded it so I just watched certain parts) I decided that I would go for a walk. My dog isn't very well at the moment, and Jamie still at work, so at 10.30am I set off walking on my own with only my iphone music for company. I didn't have a planned route or time to walk, I just went where my feet took me. I was quite surprised when I walked back through my front door to see that it was 12pm and I had been walking for an hour and a half!

I took this picture of the Abbey on my walk, how pretty does it look?!

I felt great after my walk! Admittedly my feet were a bit sore and my legs were ready for a sit down, but all in all the fresh air and exercise left me feeling awake and energised. After so long of hardly being able to do anything, it is so nice to finally become more active again. Im looking forward to my next walk now!

My third improvement is I have decreased my steroids again by 2.5mg, so I am now on 12.5mg. Each time I decrease, for the first few days I feel slightly more pain in my joints, but then it starts to get better again. I think this is because my body needs a few days to adjust to the new level of steroids. Im going to keep decreasing them by 2.5mg every few weeks until I am either in pain again or hopefully, until I am off them completely. Fingers crossed its the latter!

The only slight disappointment is my index finger still shows absolutely no sign of improvement. It is still swollen and I still cant straighten it or use it for anything. Maybe my next dose of MTX tomorrow will start to help.