So after waiting for a sooner appointment, I heard nothing for weeks and therefore I decided to email my
rheumatology nurse. It has happened before where my nurse hasn’t had any of my
notes passed to her, so I decided to tell her everything that had happened in
my appointment with the consultation so that she was prepared.
I had been in more pain since reducing my dose of mtx and my
skin had become quite sore, but I just set my sights on my appointment in March
to get me through.
So yesterday was the day that I could finally get started on
a new treatment that may work. I was apprehensive about having to inject
myself, but at the same time excited to get better. When I arrived, it was not
my usual nurse who greeted me, but another nurse named Jill. When we got in the
room, Jill said the words that made my heart sink “so you’re here for a
check-up”. Instantly I knew that my notes had not been passed along from the
consultant.
I knew that this would happen, which is why I emailed Judith
a few weeks earlier. Jill explained that Judith is on long term sick and
therefore she will be taking over her patients, as well as her own, but she had
no access to Judith’s email.
Obviously, Jill could not take my word for it that I was
meant to be starting injections, so she has to contact my consultant to confirm
this. The second bad news of the day was that my consultant has just left and
gone to Tenerife, so there is going to be a
delay. Once this has all been confirmed, the injections need to be ordered,
which can take a while.
Then even more bad news, Judith was the only nurse who knew
how to use the metoject, therefore Jill needs training before she can show
anyone else. On top of that, because she is having to see both her own and
Judith’s patients, it is going to be a long wait to get another appointment
with her.
So basically, I am left in limbo with no idea of when it is
all going to get sorted. This is just one of many occasions where I have been
let down. It is incredibly frustrating and I don’t even know what to do about
it all…
No comments:
Post a Comment